In a house that looks from the outside much like any other home in Dos
Vientos, a mother struggles every minute of every day to keep her son alive.
When 8-year-old Elijah isn't having a seizure, his mother, Terri Granard, is
still on alert, watching and waiting as she has every day since Elijah was 6
months old, prepared to give lifesaving resuscitation.
"It's like waiting for a car crash that you know is going to happen," she
said.
Elijah appeared to be healthy when he was born on Aug. 29, 2000, after a
normal pregnancy, his mother said. He was welcomed into the family by his
1year-old bigger brother, Noah.
Then, on Feb. 18 the next year, Granard and her husband, Ryan, woke up to
Elijah having a seizure.
"My husband asked, 'What's wrong with Elijah?'" she recalled.
His question wouldn't be answered for some time. The first event was thought
to have been triggered by a fever. But the next day Elijah had another seizure,
and "boatloads of testing with Xrays and blood tests" followed, according to his
mother.
No cause for the seizures could be found.
Finally, a DNA survey with a chromosome analysis revealed that the baby had a
condition called ring chromosome 14 syndrome, or ring 14. Elijah is one of 300
known cases in the world, his mother said. Ring 14 is a rare, noninherited
genetic condition.
The medical community said the prognosis regarding Elijah's longevity was
poor—that he would live only until age 2 or 3. In addition to the seizures he's
had strokes.
In a few weeks Elijah will turn 9. Those who gave him just a few years to
live didn't take into account the determination and love his family has for him.

His big brother is an "awesome, smart" fifth-grader who helps his brother a
lot, Terri Granard said..
And one of the family dogs, a rescued Doberman, has, without training,
learned to signal with one bark moments before a seizure occurs.
When Elijah has a seizure, which usually happens one to five times a day, he
stops breathing, turns blue and becomes limp like a rag doll, his mother said.
The family employs a fulltime nurse to help out with Elijah.
Sometimes he has days with no seizures.
"That's a really good day for our family," Granard said.
But when a seizure does occur, Elijah must be quickly revived. A device
similar to a pacemaker, medically imbedded in his chest, stimulates nerves in
the chest with electrical impulses. A magnet is used to swipe his chest for an
extra jolt. CPR is also necessary.
When he's not having seizures, Elijah behaves mentally like a 1-year-old
child due to brain damage from the lack of oxygen when he stops breathing during
the seizures.
"He has suffered brain damage similar to a near-drowning victim," his mother
said.
He watches the Wiggles on TV. He's fed through a tube. Elijah crawls but
cannot walk. He's learning sign language, but every time he has a stroke he goes
back to square one, his mom said.
"He is the happiest little boy despite his medical situation. He also has the
most angelic face," Terri Granard said.
For more information, go to
www.ring14.net.